Tuesday, August 5, 2008

Rarities of disease-a family connection??

Grandson Steven just got out of the hospital after being diagnosed with viral pancreatitis. This is a very rare occurrence in a kid. He had a stomach ache and pain over both kidneys and a fever. The doc at Children's Hospital in St. Paul had it diagnosed in less than two hours when the internet suggests it may take up to 6 days to do so due to the rarity. WOW!! Nice going Doc.
In the family, Sessa (Steve's Grandpa) has had over 34 operations and the oddest thing he had once was Tolosa-Hunt Syndrome (Vasculitis of the blood vessels behind the eyes in the brain)---severe pain in head treated with Prednisone for 9 months and cured with NO re0currence.
Steve's Grandpa's Brother naned Michael had a rare form of TB and got cured and ten years later, he got Wegeners Granulomatosis which is a rare auto immune disease that killed him after two years of fighting it.
Sessa and Mike's Mother died from malignant melanoma and their Dad of stomach cancer. Everyone else is healthy and now that Steve has had the pancreatitis and is OK again, this should be the end of it (God willing-and the creek don't rise). We are all sure glad our prayers for Steven and his family worked out and the sigh of relief was immense.

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